{"id":308,"date":"2017-10-18T10:47:54","date_gmt":"2017-10-18T08:47:54","guid":{"rendered":"http:\/\/liacs.leidenuniv.nl\/~kraaijw\/?page_id=308"},"modified":"2017-10-18T11:03:13","modified_gmt":"2017-10-18T09:03:13","slug":"empowerment-patients-mining-line-communities-knowledge","status":"publish","type":"page","link":"https:\/\/liacs.leidenuniv.nl\/~kraaijw\/index.php\/empowerment-patients-mining-line-communities-knowledge\/","title":{"rendered":"Empowerment of patients: mining on-line communities for knowledge"},"content":{"rendered":"<p><strong>Project synopsis<\/strong><\/p>\n<p><strong><br \/>\n<\/strong>One in three people in the Netherlands will be diagnosed with cancer at some point in their lives. And cancer remains the nation&#8217;s biggest cause of death. The internet lets patients obtain information and get support from fellow patients through on-line discussion forums, with benefical effect on well-being ( (van Uden-Kraan, 2009; Batenburg en Das, 2014). In an earlier SIDN Fund-supported project called Patient Forum Miner (2016), advanced text analysis software was developed to automatically analyse forum posts and develop hypotheses. The idea of using patients&#8217; experiences as a knowledge resource to complement curated medical data has attracted a lot of interest at several oncological conferences and at the KNAW conference on citizen science. SIDN Fund is now supporting a PhD research project, in which hypothesis generation on the basis of patient forum text mining will be scientifically validated.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-115 size-full\" src=\"https:\/\/liacs.leidenuniv.nl\/~kraaijw\/wordpress\/wp-content\/uploads\/2016\/06\/gistdemo.png\" alt=\"gistdemo\" width=\"1313\" height=\"628\" srcset=\"https:\/\/liacs.leidenuniv.nl\/~kraaijw\/wordpress\/wp-content\/uploads\/2016\/06\/gistdemo.png 1313w, https:\/\/liacs.leidenuniv.nl\/~kraaijw\/wordpress\/wp-content\/uploads\/2016\/06\/gistdemo-300x143.png 300w, https:\/\/liacs.leidenuniv.nl\/~kraaijw\/wordpress\/wp-content\/uploads\/2016\/06\/gistdemo-768x367.png 768w, https:\/\/liacs.leidenuniv.nl\/~kraaijw\/wordpress\/wp-content\/uploads\/2016\/06\/gistdemo-1024x490.png 1024w\" sizes=\"auto, (max-width: 1313px) 100vw, 1313px\" \/><\/p>\n<p>&nbsp;<\/p>\n<p><strong>Project team:<\/strong> Wessel Kraaij, Gerard van Oortmerssen, Suzan Verberne (Leiden University), Hans Gelderblom (LUMC), Stephan Raaijmakers (TNO).<\/p>\n<p><strong>Key publications: <\/strong><\/p>\n<ul>\n<li>G. van Oortmerssen, S. Raaijmakers, M. Sappelli, E. Boertjes, S. Verberne, N. Walasek and W. Kraaij, <b>Analyzing cancer forum discussions with text mining,\u00a0<\/b><em>Proceedings of\u00a0<\/em> RICHMEDSEM 2017<\/li>\n<li>Mies C. van Eenbergen, Lonneke V. van de Poll-Franse, Emiel Krahmer, Suzan Verberne, Floortje Mols. <b>A systematic review of content analysis for online cancer communities.<\/b> <b><i>Submitted<\/i><\/b> to Journal of Medical Internet Research (JMIR)<\/li>\n<li>Suzan Verberne, Antal van den Bosch, Sander Wubben, Emiel Krahmer (2017). <b>Automatic summarization of domain-specific forum threads: collecting reference data<\/b>. \u00a0\u00a0In <i>Proceedings of the 2017 Conference on Conference Human Information Interaction and Retrieval<\/i> (CHIIR &#8217;17). ACM, New York, NY, USA, 253-256. DOI: https:\/\/doi.org\/10.1145\/3020165.3022127<\/li>\n<li>Suzan Verberne, Maya Sappelli, Djoerd Hiemstra, Wessel Kraaij (2016). <b>Evaluation and analysis of term scoring methods for term extraction<\/b>. Information Retrieval, Springer. doi:10.1007\/s10791-016-9286-2<\/li>\n<li>Peter Reichardt, Michael Leahy, Xavier Garcia del Muro, Hans Gelderblom et al., \u201c<b>Quality of Life and Utility in Patients with Metastatic Soft Tissue and Bone Sarcoma: The Sarcoma Treatment and Burden of Illness in North America and Europe (SABINE) Study<\/b>,\u201d Sarcoma, vol. 2012, Article ID 740279, 11 pages, 2012. doi:10.1155\/2012\/740279<\/li>\n<li>R.B. Trieschnigg, D. Hiemstra, F.M.G. de Jong, and W. Kraaij. <b>A Cross-lingual Framework for Monolingual Biomedical Information Retrieval<\/b>. In <i>Proceedings of the 19th ACM conference on Information and knowledge management (CIKM &#8217;10)<\/i>, New York, pages 10, 2010. ACM<\/li>\n<li>Wessel Kraaij, Marc Weeber, Stephan Raaijmakers, and Rob Jelier. <b>MeSH based feedback, concept recognition and stacked classification for curation tasks<\/b>. In <i>Proceedings of TREC 2004<\/i>, 2005. NIST<\/li>\n<li>W. Kraaij, M. Spitters, and A. Hulth. <b>Headline extraction based on a combination of uni- and multi-document summarization techniques<\/b>. In <i>Proceedings of the ACL workshop on Automatic Summarization\/Document Understanding Conference (DUC 2002)<\/i>, June 2002. ACL.<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<p><strong>Funded by:<\/strong> SIDN Fonds,<\/p>\n<p><strong>Links:<\/strong><\/p>\n<ul>\n<li><a href=\"https:\/\/www.sidnfonds.nl\/projecten\/empowerment-van-patienten-patientervaringen-in-online-communities-als-kennisbron\" target=\"_blank\" rel=\"noopener\">SIDN fonds (dutch)<\/a><\/li>\n<li><a href=\"http:\/\/contactgroepgist.nl\/gist\/home\/\" target=\"_blank\" rel=\"noopener\">Contactgroep GIST<\/a><\/li>\n<li><a href=\"http:\/\/discosumo.ruhosting.nl\/wordpress\/project-deliverables\/example-results\/\" target=\"_blank\" rel=\"noopener\">Discosumo thread summarization<\/a><\/li>\n<li><a href=\"http:\/\/empoweredpatients.nl\/index.html\">Empowered patients (project website)<\/a><\/li>\n<\/ul>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-113\" src=\"https:\/\/liacs.leidenuniv.nl\/~kraaijw\/wordpress\/wp-content\/uploads\/2016\/06\/logo_gist.jpg\" alt=\"logo_gist\" width=\"111\" height=\"62\" \/><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-112\" src=\"https:\/\/liacs.leidenuniv.nl\/~kraaijw\/wordpress\/wp-content\/uploads\/2016\/06\/levenmetkanker_logo_120x100.png\" alt=\"levenmetkanker_logo_120x100\" width=\"120\" height=\"50\" \/><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-134\" src=\"https:\/\/liacs.leidenuniv.nl\/~kraaijw\/wordpress\/wp-content\/uploads\/2016\/04\/sidnfonds-logo-fb-300x158.png\" alt=\"sidnfonds-logo-fb\" width=\"300\" height=\"158\" srcset=\"https:\/\/liacs.leidenuniv.nl\/~kraaijw\/wordpress\/wp-content\/uploads\/2016\/04\/sidnfonds-logo-fb-300x158.png 300w, https:\/\/liacs.leidenuniv.nl\/~kraaijw\/wordpress\/wp-content\/uploads\/2016\/04\/sidnfonds-logo-fb-768x403.png 768w, https:\/\/liacs.leidenuniv.nl\/~kraaijw\/wordpress\/wp-content\/uploads\/2016\/04\/sidnfonds-logo-fb-1024x538.png 1024w, https:\/\/liacs.leidenuniv.nl\/~kraaijw\/wordpress\/wp-content\/uploads\/2016\/04\/sidnfonds-logo-fb.png 1200w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Project synopsis One in three people in the Netherlands will be diagnosed with cancer at some point in their lives. And cancer remains the nation&#8217;s biggest cause of death. The internet lets patients obtain information and get support from fellow patients through on-line discussion forums, with benefical effect on well-being ( (van Uden-Kraan, 2009; Batenburg [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"tags":[],"class_list":["post-308","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/liacs.leidenuniv.nl\/~kraaijw\/index.php\/wp-json\/wp\/v2\/pages\/308","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/liacs.leidenuniv.nl\/~kraaijw\/index.php\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/liacs.leidenuniv.nl\/~kraaijw\/index.php\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/liacs.leidenuniv.nl\/~kraaijw\/index.php\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/liacs.leidenuniv.nl\/~kraaijw\/index.php\/wp-json\/wp\/v2\/comments?post=308"}],"version-history":[{"count":9,"href":"https:\/\/liacs.leidenuniv.nl\/~kraaijw\/index.php\/wp-json\/wp\/v2\/pages\/308\/revisions"}],"predecessor-version":[{"id":320,"href":"https:\/\/liacs.leidenuniv.nl\/~kraaijw\/index.php\/wp-json\/wp\/v2\/pages\/308\/revisions\/320"}],"wp:attachment":[{"href":"https:\/\/liacs.leidenuniv.nl\/~kraaijw\/index.php\/wp-json\/wp\/v2\/media?parent=308"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/liacs.leidenuniv.nl\/~kraaijw\/index.php\/wp-json\/wp\/v2\/tags?post=308"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}